Category: Uncategorized
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Stability
I had my ten month MRI in January and it showed no growth. I have also had only one seizure in the past six months. My doctors now think that what I have is a benign tumor called a multinodular vacuolating neuronal tumor (MVNT). Most of these tumors never grow beyond the initial diagnosis. I…
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Living a good life
Many things have happened since that grand mal seizure I had. There was more worry when my oncologist suggested surgery again, and relief the tumor board and epilepsy board disagreed and he backtracked. I don’t want to post about that today though. I would much rather talk about the amazing things that have come out…
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Seizures
After my doctor recommended a watch and wait strategy I went home happy and excited to live more fully. Unfortunately my relief did not last long. At this point I was taking anti-seizure medications and had been on a ketogenic diet for almost two months. I did not have a seizure for eight weeks. That…
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Biopsy results part II
After my initial results I was left with a lot of uncertainty. My surgeon felt pretty sure that I was in the clear, but my oncologist disagreed. At this point I sought second and third opinions. I had my cells reviewed by another pathologist who pointed out that the cell changes were suggestive of a…
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Biopsy results part I
I could write a whole book on my biopsy results, because this turned out to be an epic saga. That said, the preliminary results were an important beginning. My results came back in stages, with the information from the pathologist who looked at the cells directly under a microscope coming back first. This report’s results…
Brain Body Medicine 